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F. De Renesselaan, 57
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Promoting interests of people with liver disease |
The European Liver Patients Association welcomes you; we are glad you are visiting our website. The purpose of this site to share information about our organization and what it is we do.
We are excited about the initiatives we are currently undertaking and always welcome the support and involvement of concerned citizens. |
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Raising awareness in migrant populations: Report from the ELPA symposium
16th June 2009
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ELPA held a symposium at the EASL congress Copenhagen on 25th April 2009. The subject was "Best practice in raising awareness in migrant populations". Hepatitis patients are especially vulnerable to health and social consequences if they are members of a migrant population: Cultural and language barriers make it difficult to communicate with their doctors, and few people are even aware of their infection. In many cultures, it is also taboo to talk about those diseases.
What can your country do to reach and help patients who belong to a migrant community, without stigmatizing them? ELPA invited speakers from various countries and institutions to present examples of best practice. Our report of the meeting can be found here.
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EASL supports ELPA in their call for a EU Council recommendation, 25th May
25th May 2009
The EU must take a leading role in the fight against viral hepatitis, says Professor Dominique-Charles Valla, of the European Association for the Study of the Liver (EASL). On behalf of EASL and from a doctor's perspective, Valla speaks of the "devastating effects of hepatitis B and C on our patients", because many people are diagnosed too late. "If diagnosed in time, however, viral hepatitis patients can lead a perfectly normal and healthy life. This is why we support we support ELPA's call for a council recommendation on hepatitis screening as a way to ensure that this disease is diagnosed and treated at an early stage." Valla also argues that the large number of chronic liver diseases other than viral hepatitis should not be forgotten. Read more ».
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Swine Flu Forces World Health Asssembly to Postpone Decision on Viral Hepatitis
18 Mai 2009
Ahead of the second annual World Hepatitis Day, the World Hepatitis Alliance (WHA) today called on governments not to forget the plight of 500 million people living with hepatitis B and C, as the World Health Assembly postpones discussion of a World Health Organization (WHO) resolution on viral hepatitis - one of the biggest threats to global health. The 62nd World Health Assembly, starting in Geneva on 18 May, has been shortened in response to the global efforts required to tackle H1N1 influenza.
ELPA shares the concerns of World Hepatitis Alliance, as one million people will die before the World Health Assembly meets again in 2010. You can find the WHA press release here.
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World Hepatitis Day on 19th May: "Are you number 12?" - Report in PARLIAMENTMAGAZINE by EU parliament
11 Mai 2009
One in 12 people worldwide are infected with hepatitis B or C, including more than 23 million people in Europe.
Shockingly, up to 90 per cent of them are not even aware of their infection. Currently, there is no systematic approach to tackle this health threat across Europe. Cross-border cooperation is essential in halting the spread of viral hepatitis, says Nadine Piorkowsky... [read more]
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ELPA, EASL and MEPs call for immediate EU action to fight hepatitis and its deadly consequences
31 Mar 2009
On 2 March 2009, ELPA together with EASL and the support of Mr. Alojz Peterle MEP presented the findings of a survey on the political commitment to combat hepatitis in Europe, as well as expert recommendations for the promotion of early diagnosis and treatment of Hepatitis B and C...
Read the full article here
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New patient group in Turkey
19 Dec 2008
A new Turkish liver patient group was set up in Istanbul on 14th November 2008, under the name of Türk Karaciðer Hastalarý Yardýmlaþma Grubu Baþkaný. Mr. Nevzat Gökmen is the head of the new group. MD Muzaffer Gürakar of the Turkish Liver Foundation initiated the founding process and will support the group with scientific knowledge. The steering committee of ELPA attended the foundation ceremony.
Read the full article here
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Hepatitis B Brochures for Download
World Hepatitis Day 2008 – It’s Time to Act!
03.April 2008
ELPA is proud to support World Hepatitis Day – taking place on Monday 19 May 2008. Together with over 200 patient groups from around the world we are pledging our support to the first truly global awareness event for chronic viral hepatitis B and C.
Approximately 500 million people have either hepatitis B or C and the majority of those infected do not know. 1.5 million people die every year from either hepatitis B or C.
read article »
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MEP and patient group ask Presidency to advance Hepatitis Screening to prevent liver cancer in Europe
22.Jan.2008
Brussels, 22 January: During the exchange of views with the Slovenian Health Minister Mrs. Zofija Mazej Kukovic in the European Parliament’s Public Health Committee, Dr. Thomas Ulmer MEP (German, EPP) calls on the Council Presidency to promote targeted Hepatitis Screening across the EU as part of their cancer prevention programme...
read article »
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Outcome of the activities held by ELPA members
19.Nov.2007
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Controlling hepatitis C represents a major challenge: it is an infectious disease affecting 170 million people world-wide. Raising awareness amongst governments and the public around the world has to be an urgent priority in order to tackle the spread of this chronic condition..
read article »
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Recommendations of the Hepatitis B expert group
18.Oct.2007
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Published during Germany’s EU Presidency, the ECDC’s annual epidemiological report revealed that the number of
hepatitis B cases in Europe has been decreasing overall throughout Europe during the last decade. However, this
trend cannot be observed in all countries and risk groups. Consequently, further efforts are needed to stem this
infectious disease wherever it has a major potential to spread.
The Expert Group’s recommendations provide a good basis for the further development of health policy within the
national responsibility of the individual Member States.
Chair:Dr. Thomas Ulmer MEP, European Parliament
read article »
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MEDIA RELEASE
Could You Have Hepatitis? New Report Shows That the Majority of Europeans with Hepatitis C Remain Undiagnosed.
3.Oct.2007
European Liver Patients Association urges people at risk to get tested!
Brussels, Belgium, 1 October 2007 (Embargo – 00.01 CET) A report released today by the Central and Eastern European Harm Reduction Network (CEEHRN) highlights the significant inconsistencies that exist in hepatitis C (HCV) diagnosis and treatment across Europe and beyond. In recognition of World Hepatitis Awareness Day, patient groups around the globe are united in their call for action.
read article »
World Hepatitis Awareness Day, Activities for Oct 1st
 | Controlling hepatitis C represents a major challenge: it is an infectious disease affecting 170 million people world-wide. Raising awareness amongst governments and the public around the world has to be an urgent priority in order to tackle the spread of this chronic condition..
read article »
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Hepatitis patient’s group hails Roddick’s contribution to EU awareness-raising
campaign
 Brussels, 11 September 2007 - The European Liver Patients' Association (ELPA) has
expressed its sadness at the sudden death of Dame Anita Roddick, and its gratitude for her
active support of organisations campaigning for better research into liver disease and care for
patients suffering from liver problems.
The group praised her work with their UK member association, the Hepatitis C Trust. She
recently had a massive impact on ELPA’s EU campaign to raise awareness of hepatitis C as
a ‘silent killer’. She joined the campaign following her discovery that she had carried Hepatitis
C for nearly 20 years, having contracted it from a blood transfusion, and subsequently
suffered from cirrhosis of the liver.
read article »
Hepatitis B & C screening results: Bulgaria
Unexpected high number of HCV cases in Sofia and Varna
During the period May - June 2007, the Bulgarian National Hepatitis Association, HEPASIST, organized a screening campaign which provided free testing for both hepatitis B and C amongst two different groups (the general public and medical staff). The testing took place in Sofia and Varna, Bulgaria’s second biggest city.
read article »
ELPA SURVEY
ELPA is launching a new survey about HCV/HBV which looks at what it is like to be a patient (experiences with GPs, with misdiagnosis, with waiting for treatment, etc).
read article »
Prevention, Access to Treatment and Position of Hepatitis Patients in the ELPA Members' Countries
Split, Croatia, 28. 06. - 30 06. 2007.
OUTCOME OF INTERNATIONAL HEPATITIS MEETING
As it was announced in our website, Split saw it’s first 2-day international hepatitis conference successfully take place on the 29th and 30th of June 2007.
read article »
European Parliament demands EU-wide action on Hepatitis C
On 29 March 2007,
the European Parliament called for EU-wide action on Hepatitis C by formally adopting the Written Declaration on Hepatitis C with an overwhelming support of 470 Members of the European Parliament – the highest endorsement of a Written Declaration since 1999. It will now be forwarded to the Commission and Council, together with the names of the signatories, who are expected to comment in due course.
read article »
Written declaration on hepatitis C
pursuant to Rule 116 of the Rules of Procedure
by Jolanta Dickute, John Bowis, Stephen Hughes, Frédérique Ries and Thomas Ulmer on hepatitis C
read article »
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